Safy

The results of the PET scan performed last Monday unfortunately show that the disease's progression is not favorable. Compared to the examination at the beginning of September, we can notably observe the reappearance of the mass in the psoas muscle, bone lesions and, above all, a very significant tumor activity. In short, the previous chemotherapy protocol yielded a good response at the level of the central nervous system, but did not allow to obtain the expected remission for the rest of the disease. A new treatment protocol, the fifth since the beginning of my treatment, has therefore been proposed to me. It will begin

I have just completed the third chemotherapy session of the fourth treatment protocol for my cancer. This session went rather well. Apart from a great fatigue, I did not experience particularly troublesome side effects. The next step is now the TEP scan scheduled for next week. We hope that its results will confirm the possibility of undertaking the bone marrow transplant project. This project is also starting to take shape. I have already met the teams at the Léon Bérard Institute in Lyon and then those at the CHU de Grenoble. In the end, it is in Grenoble that my journey should continue.

As Safyatou indicated in August, a new treatment protocol has been put in place. We recently received confirmation that I am responding to the treatment in accordance with the expectations of my attending physicians. And for now, I remain hospitalized at the Daniel Hollard Institute. This week, and in the coming weeks, I am therefore continuing with the chemotherapy cycles. If this positive response is confirmed, the bone marrow transplant project can once again be part of the next steps in my treatment plan. After the particularly difficult weeks I have been through, I also note

I am taking up my pen again today to give you some news about Piero. These past few weeks have reminded us, once again, that his treatment journey is not a straight line and that the planned steps can evolve based on his response to treatments. To date, the transplant plan we spoke about previously is no earlier the immediate step. Previous treatments had allowed for a significant regression of the disease, but new tests have shown that the level of response necessary to move forward to the closing chemotherapy and then to the transplant is not yet

The new protocol seems to be yielding the expected results. The latest examinations carried out a few days ago, notably the PET scan and the CT scan, are very good. My doctors are pleased with the progress and consider that we are on the right track. However, the situation remains rather paradoxical. On the paper of the medical reports, the news is encouraging and the current protocol appears to be the right one. In the reality of my daily life, the treatment remains very heavy and its side effects leave me very little respite. Fever and fatigue are still very present and

The new chemotherapy protocol has now begun. In a way, we've started from scratch again. This means that, in the best-case scenario, the end of the treatment is now envisioned for October. The first few days weren't easy. I experienced significant side effects, particularly nausea. Fortunately, they gradually subsided, and I'm feeling a bit better today. As of yesterday, I'm back home. As with every return, fatigue remains very present, but I remain optimistic about the continuation of this new protocol. The coming weeks will allow us to gradually measure it

This past week has been particularly difficult. The new chemotherapy did not go as planned. I had a significant reaction to one of the drugs in the protocol, which led the doctors to transfer me to intensive care for a few days to ensure close monitoring. This period was very trying for me, but also for my loved ones. Fortunately, once this reaction was under control, the doctors were able to resume the assessment of the situation and observe the first effects of the new treatment. And that's where the news becomes more encouraging. For the first time in a long time, the fever

I am exceptionally taking up my pen to share some news before Piero resumes treatment tomorrow. These past few weeks have been particularly difficult. The first chemotherapy brought mixed results. The tests showed positive effects, but they also confirmed that the main objective regarding the tumor had not been achieved. Fever, fatigue, and pain continued to play a significant role in Piero's daily life. They led to several hospitalizations, numerous additional tests, and a period of uncertainty that was particularly trying for all of us. After several weeks of waiting, questioning, and

The results of the exams performed last week bring both good and less good news. This is quite disconcerting for us, and also for the doctors, as the results do not paint a simple picture to interpret. The PET scan shows that the bone marrow involvement has disappeared, which is very good news. The tumor mass in the psoas has also regressed. On the other hand, the tumor remains very active and very present. Furthermore, the fever persists when it should normally have disappeared at this stage of treatment. This is the point that

The last few days have been difficult. After 48 hours in the hospital at the Daniel Hollard Institute, I was able to go home. This return is a good thing, even though fever and fatigue remain and continue to severely limit my daily life. I had hoped to recover more after this third chemotherapy. This time, things did not go as I imagined. This is probably what makes this period particularly difficult for me. During today's appointment, the doctors confirmed that my general condition is not improving as expected. Despite blood tests that are still progressing and positive, the