June 3, 2026 – Still uncertain

The results of the exams conducted last week bring both good and bad news.

This is quite disconcerting for us, but also for the doctors, as the results do not clearly depict a simple situation to interpret.

The PET scan shows that the bone marrow involvement has disappeared, which is very good news. The tumor mass located in the psoas has also regressed.

On the other hand, the tumor remains very active and very present. Furthermore, the fever persists, whereas it should normally have disappeared by this stage of treatment. This is the point that particularly perplexes the doctors.

To better understand the situation and decide on the next steps for treatment, I was readmitted to the hospital today for further tests. The goal is to determine which therapeutic strategy is now most appropriate: continue the current protocol, adapt it, or consider another course of action. Among the possibilities being considered is also a transfer to Lyon.

This lack of visibility is difficult to deal with. Since the beginning of this situation, we've been moving forward step by step, but we've had a clear direction until now. Today, we're experiencing a form of uncertainty again that complicates things morally, but also in terms of organizing daily life.

I won't hide that this situation is affecting my morale. The temporary halt to chemotherapy sometimes makes me feel like the disease is regaining the upper hand. I know, however, that this is primarily a feeling and not an established medical reality.

What is certain is that we currently lack reliable information to understand precisely what is happening. And when one is engaged in a battle like this, the absence of reference points is particularly trying.

For now, we must wait for the results of further tests and the doctors' conclusions.

Safyatou often reminds me that a victory against cancer should not be a Pyrrhic victory. The goal is not just to eliminate the tumor, but to find a sustainable solution that also allows me to get through treatment in the best possible conditions.

Once again, we must be patient, let the professionals do their work, and hope that the coming days will bring more answers.

We will keep you informed as soon as we know more.